Hi there everyone!! Katie had the idea to do a little video greeting for everyone to show you my place here in Seattle. Although Katie (and Ronnie, her internet video adviser), did a great job, I still have to laugh because I look and act a bit drugged in it….Don’t worry, I’m all good! They think it’s a combo of the meds, exhaustion in general, and everything I’ve endured. It’s OK if you laugh!!…hey, I did! So, here’s the video:Â (PS Sorry about my hair situation…I totally flattened it with a hat!!)
And now for some photos. I don’t have too much to add to this post except for the fact that they did confirm that I have a little bit of GVHD (from the results of the skin biopsy). Luckily the rash is doing much better, and I haven’t swollen up much yet with the prednisone…indeed, my eyes are actually getting back to normal! We had lots of appointments today: blood draw, appointment with my team, another with my nutritionist, one with my social worker and to end the day, I had a chest x-ray, which is part of the protocol once you show any signs of GVHD. Everyone agrees I look wonderful though, and it feels good to have them constantly remind me! Today, by the way, is post-transplant day #42!!!!!!!!!! Can you believe it?! It’s going by very quickly, I must say.
I’m looking forward to seeing Maya and her mom later this week, as well as Laura!! It helps so much to have all your support and to have all these visits to look forward to. Plus it’s nice that I only have to go to the clinic twice a week!! What will I do with all this time?!!
Love from Seattle!
OK, here are those pics I promised:
I can't remember the name of this activity, but they're all decked out in Renaissance gear, and they're running around with swords...kinda crazy to see that when Katie, my mom and I first walked into Gas Works Park!!
I got several shots for you so you could feel like you were there! Are you getting sick of all my photos?! :)
Looks kinda fun, kinda dorky! :)
Get 'em!!!!
They're so fast, it's blurry!! hahaha
Katie and I walkin' in Gas works, a very cool park in Seattle
There's the park, and the beautiful cityscape behind it.
Isn't that gorgeous?---even with the clouds!
You may wonder why we are hanging out under a bridge with other Seattlelites and tourists...
BECAUSE a troll lives here!!! That's a full-sized VW bug he's squishing! You can find him under the Aurora Bridge in Fremont.
oops...this one got mixed in...here we are back at Gas Work looking through to the city.
Unfortunately, some lazy guy was standing there taking picture after picture of his own children (using an tripod)....talk about boring pictures! Get up and get some different angles, buddy! Anyway, those would be his children, and a great view of the troll. :)
Hey! Look! If you peer behind his head, you can see me! There, I snuck into your pictures, you crazy picture hogs!
Hey, it's me again!!!!
And once more, in case you didn't get enough of me (those darn kids are still here! --they always ruin parks and stuff by getting in the way-- hahahaha only teasin')
Oops! No matter what I do, I keep mixing up the sequence. Anyway, this is from a walk I went on with Paulina...just a gorgeous day by the water.
One more shot of my troll buddy (those kids forced me to come to the back to get a solo shot!!!).
Look at this beauuuuutiful pie from Le Panier, Katie's favorite bakery down at Pike's Place.
Would you have believed me if I said I baked it?!!!!! hahaha
We were able to head out to Szmania's, one of our faves here in the Magnolia neighborhood of Seattle...just wanted to set up what a cozy scene it was! Katie, my mom and I enjoyed it!!
Katie's yummy smoked salmon appetizer! Wish I could eat it!
And my goulash---verrrry warm and cozy to sip on while sitting by the fire.
a chilled glass, some candlelight and flowers to complete the relaxing mood.
And obviously the bread is delish!
Mmmmmm.....my sauerbraten!!! With red cabbage, potatoes and some veggies...superdelish!!!
And Katie's dinner, pork and sauerkrat!!
I like this pic of Mom and Katie!! Katie purchased this hat here in Seattle, and my mom kept teasing her about wearing it without a heavy coat. :) I think you look cute, Katie, like you have little braids!!
Hi Julie,
Loved your video, Katie did a great job! Hope that rejection stuff stops soon. Can’t wait to visit, see you soon.
Love,
Aunt Bitsy
Nov
19
6:39
AM
Andrew Colletti
Nice video! Make me homesick. It doesn’t look all that bad out there in NOvember. Here it is 28 degrees this morning.
Thanks for the message! ONe day, when the kids are in high school, I’ll get back to my email and phone messages!
I am lovin’ that rash–it’s perfect. Killing the remaining leuk roaches and yet not really a big deal in the long run. You could be looking like a tomato!
I think I said it before, but you are so kicking my transplant butt! Must be the hoola hoops…
Nov
19
1:35
PM
ken
Great video
You look and sound like you are doing great.
keep up with the video adds more fun to youre blog,
its cold in fla sunny and 61
Nov
19
4:57
PM
Laurel
I felt like I was watching an awesome episode of Cribs! Katie “Spielberg ain’t crap” Matthews did a fabulous job. It was nice to see the place that you are constantly describing and I can’t tell you how jealous it made me not to be there!
Nov
19
8:06
PM
Susan
Thanks for the video, Julie (and Katie and Ronnie)! I love your apartment! It’s urban living at its best. I think once you’re feeling at your best, you should go play with the knights. It looks totally dorky, but it might be good exercise!
Nov
20
6:05
PM
paloma
More videos please! that was so great. You should do one walking around the neighborhood - but you HAVE to wear the princess hat.
Six months after my 30th birthday, I faced acute myelogenous leukemia for the second time. I had a bone marrow transplant October 7, 2008, and I look forward to enjoying many, many more healthy years now that Laura (my sister) gave me the "gift of life", as she keeps referring to it.
19
AM
Hi Julie,
Loved your video, Katie did a great job! Hope that rejection stuff stops soon. Can’t wait to visit, see you soon.
Love,
Aunt Bitsy
19
AM
Nice video! Make me homesick. It doesn’t look all that bad out there in NOvember. Here it is 28 degrees this morning.
Thanks for the message! ONe day, when the kids are in high school, I’ll get back to my email and phone messages!
I am lovin’ that rash–it’s perfect. Killing the remaining leuk roaches and yet not really a big deal in the long run. You could be looking like a tomato!
I think I said it before, but you are so kicking my transplant butt! Must be the hoola hoops…
19
PM
Great video
You look and sound like you are doing great.
keep up with the video adds more fun to youre blog,
its cold in fla sunny and 61
19
PM
I felt like I was watching an awesome episode of Cribs! Katie “Spielberg ain’t crap” Matthews did a fabulous job. It was nice to see the place that you are constantly describing and I can’t tell you how jealous it made me not to be there!
19
PM
Thanks for the video, Julie (and Katie and Ronnie)! I love your apartment! It’s urban living at its best. I think once you’re feeling at your best, you should go play with the knights. It looks totally dorky, but it might be good exercise!
20
PM
More videos please! that was so great. You should do one walking around the neighborhood - but you HAVE to wear the princess hat.