There’s no bone marrow like a Seattle bone marrow.

Written by JKM on September 10th, 2009

Happy September!!

You haven’t heard from me in a while, but that doesn’t mean I haven’t been compiling photos for ya’ll to enjoy!!!!  :)  Yes, I’ve been a busy girl.  Birthday parties, a race, the canine cruise and happy hour, walks in the neighborhood…you know, just generally good, fun stuff!

What a wonderful summer it was.  Now the katydids are quieting down and the thermostat is dropping (thank goodness!), so we know fall is nigh.  I know pretty soon my desire for iced tea will switch to apple cider and hot chocolate.  Tonight, while driving the pups around on our evening survey of the neighborhood (after our walk), I saw my first pumpkin.  Not ever in my life, but my first one of the year.  :)  Thank you Butlers for being the first to start decorating!

So, it’s hard to believe it’s September, don’t you agree?  I will be in Washington state in a week and a half.  I got my schedule a few days ago, and I thought I’d share it with you, because a lot of people are curious as to know what my one-year check-up entails.  So, here you go:  Monday, the 28th, I start at 7:30 AM.  I register, go to blood draw (and I’m sure they’ll be taking lots of tubes!), then head to the gynecologist, followed by a dentist, followed by a pulmonary function test, a meeting regarding a respiratory study I’m participating in, and finally a bone marrow aspiration!  My day should end around 2 PM.  Tuesday, I have an “axial skeleton with radiology”…a bone scan, perhaps?  After that, I have a two-hour meeting with a long-term follow-up physician, physician’s assistant and nurse, and finally an appointment with an ophthalmologist.  Wednesday, I have the day off.  Thursday, I meet with the nurse regarding vaccinations, the long-term follow-up physician and the pharmacist (separate meetings, by the way).  And that’s that!  I’ll have some busy days, and I’m excited about it.  That’s right…not only am I thrilled to be going back to Seattle, but I can’t wait to walk through those clinic doors and get the SCCA two-thumbs up, clean bill of health, thorough check-up!  Plus, there’s no bone marrow like a Seattle bone marrow.  Yup, you read right!  Picture yourself lying on a table with heated blankets and classical music playing softly.  You can have as many pillows as you need, and you’re encouraged to relax.  Sure, it’d be more relaxing if there weren’t any needles involved, but life can’t be perfect.  :) Dr. Kales, you will ALWAYS have the highest rating for painless bone marrow biopsies/aspirates, but Seattle beats ya on the ambience.  Perhaps I should suggest that my doc’s office provide similar luxuries.

On the job front, well, there’s nothing on the job front.  As I wrote previously, I just did it, as Nike recommends, and I called Rachel from Washington Women in PR.  She never called me back.  It’s possible she’s on vacation, but considering it’s been almost a month since my e-mail, and taking into account that her contact information is on their website with regards to the volunteer project, I’m pretty darn sure I won’t be hearing from her.  Some PR person she is!  :)  Anyone have a friend in PR?  Remember, it’s all about contacts, contacts, contacts.

I did fill out the Myers-Briggs assessment test today, as well as the Strong Interest Inventory, both offered to me for a small fee through UVA alumni career services.  Now I’m just waiting to hear from someone in the office who will interpret the results.  I’ll let you know what I discover…it’s exciting, isn’t it?

This is a relatively short post tonight (although you have lots of pictures to peruse).  Laura, if you’re reading this down in Costa Rica, Indie is quite happy here!  We’ve been taking walks every day, and she especially enjoys the car ride aferwards, when we tour “English Hills Game Park”.  I thought she was going to jump out the window when she saw a groundhog…in fact, they all went crazy!!  Now, why does a little groundhog get them more excited than the many deer we see every night?  Bella’s been a bit more bold, showing herself in broad daylight.  Indie fixes her eyes on little Bella-bell and sits very still, her muscles tensed.  I don’t think they’ll ever be BFF’s.  :)  In other Indie news, she is frustrated that she can’t sleep in bed with me.  She puts her enormous paws and head in my face and just sits there.  I put a purple bandana on her, and one of our neighbors commented on how stylish all the pups were.  I think I’m mastering the art of walking three dogs at once, and I’m having a lot of fun!  To be honest, Indie, myself, Mom and Dad will all be sad to see Indie go back home with you and Tiso.  Jameson and Guinness might be OK with it though.  hahaha  Although Guinness has had several play sessions with her!

OK, I best be going.  Laura and Tiso, enjoy your time in Costa Rica!  Indie’s very comfortable here with us.  In fact, she’s lying beside me on the couch right now, and she says something about how she loves me the most now.  But don’t worry…I’m sure she’ll remember you when you get back.  I hope so anyway.  :)

Hope everyone is doing well!

Oh, one more thing!  Here’s a link to the “Connection” article about “Bark for Life”.  My comments sound rather childlike, but oh well!  Check out the picture on the top right-hand page of the article.

http://www.connectionnewspapers.com/article.asp?article=332066&paper=73&cat=104

Lots of love,

Julie

PS Laura, don’t get all upset about Indie jumping out of car windows…I exaggerated a bit.  =)

PSS Another message for you, Laura…Indie is quite a loud snorer!  :)  Somehow it doesn’t bother me when dogs snore though…just people.

Written by JKM on August 31st, 2009

I know, two posts in one day…aren’t you just beside yourself with excitement?!!  :)  I was just thinking.  Sometimes I do that, you know.  I was thinking about my upcoming trip to Seattle (we leave in three weeks!) and remembering my four and a half months spent there last year.  I can appreciate how strange this may sound to all of you, but I believe I just realized that those four and a half months will represent one of the happiest times of my life.

Although there were days that went by in a blur, days when I could only think of the next opportunity to lie down, I mostly remember enjoying my mom’s company (and now I’m crying thinking of how much she did for me and how special she made my stay).  I remember everyone’s visits, I remember how homey our apartment felt, I remember admiring the Seattle cityscape while watching every episode of “Frasier”…what a great purchase those DVDs were!  I remember the clinic and how safe I felt.  I remember our trusty rental car that made life so much easier (despite that damn Pete Gross House garage!).  I recall delicious restaurants, breathtaking views, dogs galore, REI, yummy coffee, QFC, beautiful flowers, seaplanes, Mount Rainier, evergreens, Route 5, hills aplenty, my South Lake Union neighborhood.

Am I the same person who left VA only a year ago, planning to make the best of it, but predicting a bleak several months?  I’m already feeling sad to leave Seattle, and I’m not even there yet.  How’s that for surprising?  I’m a little bit nervous about experiencing the city as a tourist.  It felt so satisfying to leave in January and think “we’ve made this city ours”.  And part of me will be a little jealous not to have my mom to myself.  Although we always had visitors, it was essentially the two of us navigating the city streets and the clinic halls.

I am sure that this visit will bring new adventures and memories, but I will always recall those four and a half months with my mom as the ultimate Seattle experience.  As anyone does who longs for the past, I would like to go back and try and make each moment more memorable…try to express to my mom and my family exactly how much they mean to me and how fun they made the experience…to tell my friends and family just how uplifting their visits were, to remind myself just how special the little moments were each day I spent with my mom.  I think she knew how I felt, even when she listened to me complaining about her driving.  :)

I’m sitting here now with a pile of Kleenex beside me, remembering, and wishing I could turn back time and spend several more weeks or months exploring with my mom.  But the beauty of nostalgia is that it represents the past, and the mere feeling of it is pleasant in and of itself.  Something that already seems perfect shouldn’t be altered, and our time out there was indeed perfect.  I looked up some quotes on “nostalgia” to see if there were any good ones and I thought you’d like these two:

“There’s a certain nostalgia and romance in a place you left.”  ~David Guterson

“Nostalgia isn’t what it used to be.” ~Peter De Vries

hahaha…that second one cracks me up!  And the first one, well, I think I’ve aptly described the nostalgia and romance I feel for Seattle.  I am so lucky to be able to feel that way considering the circumstances.  Who knew a city could stir up so many strong emotions?  I feel like I should be writing Seattle a love letter.  :)  And I think I’ll sign it “Lots of love from an honorary Seattleite”.

Love to all of you too,

Julie

Deep Thoughts by Julie

Written by JKM on August 30th, 2009

Not surprisingly, I’ve been thinking a great deal about the job search process.  I’ve learned that apparently those who simply send out resumes and look for openings on-line and in the paper find a job only 10% of the time.  It’s all about contacts, contacts, contacts.  I think they should reinforce this idea more throughout high school and college.  I’ve understood the concept of “location, location, location” since I was little, but it seems to me that finding a job comes before buying a home so the former advice is absolutely essential.  When my career coach recommended I call a PR professional and ask her for coffee so I could 1)make a contact and 2)learn more about the profession, I felt familiar butterflies in my stomach.  So, just call this stranger and say “hi, I’m Julie and I’m trying to learn more about public relations…will you meet me for coffee?”.  Despite the fact that facebook labeled me as an “extrovert” when I took its Myers-Briggs test (and I’m sure facebook is a reliable source!  hahahaha), I know that I am not the most outgoing person.  Neither do I consider myself painfully shy.  I think I would label myself as “friendly”.  Would I be the first to jump up  and sing at a karaoke bar?  Certainly not!!!  But I would challenge myself to do it, and I would get up there and give it a go.  In fact, I challenge myself all the time.  I go to weddings and parties by myself, I join classes to learn new skills, I try and say “yes” to any social opportunity that comes my way.  So why then does it sound so daunting to approach a stranger in a professional field about which I’d like to learn more?

I’m sure there are many possible answers, of course the most obvious being my lack of experience and working hiatus.  My career coach pointed out that many people go back to work after an even longer hiatus; for example, a mother who returns to work after raising her children.  I think the most important thing is to become conscious of what you have learned in that time away from the professional scene.  Cancer required me to become more outgoing.  Each day, I met new doctors/nurses/patients, and I constantly practiced my small talk skills.  I was also forced to learn how to self-advocate.  Meeting new people became a joyous occasion and a good way to refocus my thoughts…”if I ask them about their weekend and  their children, I can avoid the cancer talk for a little bit”.

So many people say cancer is “just a bump in the road”, something to get over before reassessing the road ahead (did I go too far with that analogy? :) ).  I think that “bump” is something much more significant.  Sure, it’s an obstacle at first, but it becomes a launching point, like a trampoline or something.  :)  You confront it, you learn from it, and you use what you learn to forge ahead.  Maybe facebook is right…maybe I’m more of an extrovert than I used to be, and I guess I have leukemia and the experiences it brought to me to thank.

Tomorrow I’ll call Rachel, from Washington Women in PR.  I’ll have notes to help me and my dogs for support, and I’ll just do it.  I think I need to make Nike’s slogan my mantra.  What do I have to fear?  I kicked cancer’s a** twice.  “Just do it” is so simple, so direct, so…appropriate.

I’ll let you know how the talk goes, and also, stay tuned for a blog about canine happy hour and the canine cruise!!  They were a blast!!

Lots of love,
Julie

FYI, a warning:  If you’re reading this, consider yourself a contact!

Written by JKM on August 24th, 2009

Happy Monday everyone!  Well, actually, it’s almost Tuesday, so happy Tuesday as well.  Perhaps you should start your day with this image: http://www.npr.org/blogs/thetwo-way/2009/08/_nuts_is_now_a.html Amazing, isn’t it?  It’s sure to make you smile, no matter how busy your day.  Maybe another good way to start the day is to listen to this song.  I heard it on the Dawn commercial (when they’re washing oil off of some adorable marine life, and I love it!!  My new favorite.  :)  http://www.youtube.com/watch?v=YTdCzIduUb4 Can you listen to it just once?  :)

Let’s just keep this an animal-themed post, how about that?  “Bark for Life” went really well.  Luckily, the rain didn’t start pouring down until much later in the afternoon.  The turnout was not what the website said (almost 300), but I really enjoyed it.  There were maybe 20 people there, and everyone seemed to be having fun including, of course, all the canines!  It was the first “Bark for Life” event in Fairfax County, but they plan on having another one in the spring of next year.  I hope talk about the event spreads because it’s so nice to participate in a fundraising event with your dogs.  It adds a different level of fun.  They mentioned that they might like me to speak next year as well, so plan on coming out, whether or not you have a four-legged friend…as long as you like four-legged friends, of course.  It really is a great event.  There was a priest there who blessed all the animals.  The Vienna/Oakton “Connection” was also there. One of their writers interviewed me and took a picture of Guinness, Jameson and I standing in a baby pool.   I’ll let you know if it ends up being published.  Oh, and I almost forgot!  Jameson and Guinness both took the K9 Good Citizenship Test and they “passed with suggestions”….hahahahaha

Anyhoo, I figured rather than blab on and on, I’d simply post the speech I gave on Saturday.  Stay tuned for the video version.

Lots of love,

Julie

“Bark for Life” speech, August 22, 2009

One Newfoundland.  Three Border Collies and one Australian Shepherd mix.  Five dogs who made/make my life more joyful.  Thunder, Sherlock, Agatha, Jameson and Guinness.  They inspired me to write a college psychology paper about the importance of animal companionship.  Their absence in my college days prompted me to volunteer at the local SPCA, as well as a local farm.  The farm owners started an organization that brought troubled teenagers out to learn how to care for the animals.  It was a form of therapy for them.  I volunteered to help with the teens, and each time I would pull into the drive, I was greeted by at least ten dogs, a goat and sometimes bunnies.  It was most definitely a therapy for me as well.  Many years later, back at home and enjoying our two newest family members, Jameson and Guinness, I was diagnosed with acute myelogenous leukemia.  Doctors informed me I would be admitted to the hospital for at least one month.  Eric, a nurse and representative from Life with Cancer, visited that night and asked if there was anything I needed.  A dog, I thought, I need a dog!  Through research for my paper and my general interest in animals, I knew about the pet therapy programs.  I requested dog visits, and Eric quickly secured a “pet therapy” prescription from my physician.

I looked forward to those visits each day.  Sometimes the dogs would lie in bed with me while I rubbed their bellies, and other times they walked with me in the halls as I did my daily laps.  I remember Leslie, the pet therapy coordinator at Fairfax Hospital, and her beautiful yellow lab, Miles.  Then there was Astro, an adorable black-lab mix.  There were many others who made each day brighter for me.  One day, they brought a dog in, and I sat up in bed to greet it.  When I looked over, I saw that it was Guinness!  My family had worked with Leslie to bring in one of my own dogs, and it was a wonderful surprise.  Even on days when there was a “no visitors” sign on my door because of my low blood counts, I would walk out to the nurse’s station with my IV pole and tell them “Just because it says ‘no visitors’ doesn’t mean I can’t have dogs.”  They would smile and say, “OK, Julie.”

I think dogs make perfect caregivers.  They have a calm and quiet nature, and they seem to know when you’re not feeling well.  I recall one night when I was giving myself chemo at home, and I was resting on the couch.  Jameson walked over and laid his head on my neck for several seconds.  It felt so reassuring, as if he were saying “It’s OK, Julie.  Everything will be all right”.  They are also good motivators for exercise.  You have to get up and play with them and go on walks, which was good for me as well as them.

I was home with them a little over three years before I began working part-time.  However, three months after I started working, I relapsed.  So, here we go again.  I was in the hospital for another month, and I immediately requested pet therapy.  Again, they came to my room almost every day, and they were a very important part of my treatment.  We decided to have my bone marrow transplant out in Seattle, and my mom and I made it our goal to meet as many Seattle dogs as we could.  If you’ve ever been there, you know it’s quite a dog-friendly city, so we didn’t have a difficult time.  Everywhere we went, there were dogs to pat, and this was very helpful while going through the transplant.  Four and a half months later, we came home, and we received the best greeting you can imagine.  It was nothing short of wild enthusiasm.

Here we are now, and I am doing well.  Last week, I had the best blood counts I’ve ever had!!  When we go on our nightly walks, I look around us and smile.  I close my eyes and smell the air.  I listen to the crickets and the katydids.  And all along, I walk to the rhythmic beat of paws on pavement and the soft sound of panting.  I look down and watch Jameson and Guinness sniff the grass and the bushes, and I am grateful!  Guinness walks bow-legged, his fluffy tail high in the air.  Jameson walks like a debonair dog, no muscle or paw out of line.  They remind me of my grandfathers, one refined in dress and behavior, the other decked in plaid and stripes, speaking in colorful language.  They are so much more than my pets.  They are my guardian angels, my closest friends, my healers.  To them, I say “thank you”.  For their love, their company and their gentle reminders to appreciate each day, whatever it may bring.  And the healing continues!

Another good report!

Written by JKM on August 18th, 2009

“Get a job!”  Dr. Orloff told me this twice during my visit on Friday.  My numbers are wonderful…almost all are in the normal range, and those that aren’t are not far from it (white count:  5.06!, neutrophils:  2.14, hemoglobin:  12.3, hematocrit, 33.9 and platelets:  194,000).  I was ecstatic, Dr. O was happy to pass on the news, Kim and Sharon at the office were excited…it was an all-around first-rate appointment!  He told me I don’t need to come back for two months, so I’ll pay them a visit after my trip out to Seattle.  I mean, this is a big deal!!  Dr. Kales called Saturday morning to tell me about reports Seattle requested I bring with me to my appointments.  I was so happy to talk to him, and I almost wanted to ask him, “When can I see you again as my doc?”.  I know I’m in wonderful hands with Dr. O, but you all know how I miss my main doctor.  After several years under his care, I imagine it would be difficult not to feel so attached.

My next adventure (OK’d by Dr. O…in fact, he OK’d pretty much anything I feel like doing–within reason.  He advised against taking up any extreme sports.) is tubing…so, who wants to go?  I figure a little float down the Shenandoah is a good way to round out the summer, don’t ya think?  Before we know it, fall will be here (and hopefully it will bring with it some gorgeous weather).  With the beauty of the season comes the worry of flu, and this year we have the added worry of a possible swine flu epidemic.  Dr. Orloff said I will definitely get the typical flu shot, however not enough is known about the H1N1 vaccine.  Within the coming months, medical professionals will have more information about it, and my oncologist should make his decision about whether I will receive it.

In other news, I’m working on finishing up my speech for “Bark for Life” this weekend.  I’m so excited about this event, mostly because I will have the opportunity to recognize Jameson and Guinness.  Laura plans on taping it, so hopefully we’ll be able to put it up on the blog at some point.  Or, come on out to the walk!!  It will be at Lake Fairfax Park in Reston at 8:30 AM this Saturday, August 22, 2009.  Click here http://main.acsevents.org/site/TR?pg=entry&fr_id=12677 for detailed info.

I haven’t made much progress on the job front, but it’s always at the back of my mind.  I felt a sense of urgency with Dr. O’s order to “get a job”!  :)  My parents are so patient, and after all I’ve been through with leukemia, I know they want me to discover a career that will bring me joy and fulfillment.  They are not rushing me, and although part of me feels guilty, the other part is simply grateful.  Guilty because I should be exerting more energy in my search and grateful because they provide me with the opportunity to conduct a job search in a way that feels comfortable to me.  I know I am spoiled.

Last year at this time, a job was an abstract word that I put in the recesses of my mind so I could concentrate on getting well.  I know, you’re sick and tired of reading “last year at this time”, but tough!  I can’t help but compare and contrast.  So, to continue, last year at this time, I wasn’t worried about working.  I was thinking about surviving.  Mostly, I was worried about traveling far from my family and friends to get a transplant in Seattle.  I was nervous as I filled up boxes to mail out to myself at my new home, the “Pete Gross House”.  I made a tape of noises I might miss in Seattle:  the screen door shutting, Jamie and Guinness barking, katydids.  Would I ever hear them again?  Anticipation made me feel almost sick to my stomach.  But I went.  In some ways, it doesn’t seem so long ago.  Then I scan my blog, and I realize how many posts I wrote, how many pictures I took, how much better I now feel, and it appears as though many years passed since last August.

This August, I’m excited to go back to Seattle, my second home.  I’ve made a list of restaurants to visit, people to see, new places to explore.  In my head, I’m planning the outfits I will wear to the clinic for my four days of testing.  I’m hoping it will be chilly enough to don the new black coat I got in Falmouth.  I hope Carlo (remember, my neighborhood dog?) is outside “Paddy Coyne’s” so I can stop by and say hello.  I will relax by the huge fireplace in REI, I will enjoy a latte at “Vivace’s”.  We’ll buy some pumpkin bread at “Grand Central Bakery” on Eastlake.  We’ll go for a walk around Green Lake, watch the seaplanes come in on Lake Union, head over to University Village for a stroll through favorite stores.  We’ll head down to Pike Place Market to explore, we’ll search for outdoor events and adventures, and we’ll drive around the neighborhoods to admire the homes and the views.

Oh yah…and I’ll go to my follow-up visits too.

Lots of love to all you faithful readers out there,

Julie

Written by JKM on August 12th, 2009

All these years I thought of Hawaii as a blissful vacation destination, the tropical getaway to top all tropical getaways.  Well, the wool is no longer down over my eyes!  I was recently informed of…”termite night”.  That’s right…termite night.  Apparently, one of the harbingers of summer is a swarm of termites.  When the trade winds settle down and the nights are warm, out they come.  Eileen, a family friend, visited Hawaii last month and experienced it firsthand.  She was relaxing outside after dinner with one of the homeowners when he noticed a termite.  He hurried Eileen into the house, turned out all the nights, and bid her farewell.  Yup, the termites ended the evening!  Her friends spent the rest of the evening watching a movie with little bowls of water set up under the television to drown the little buggers (who were drawn to the tv because it was the only light in the house).  Here, read this from a blog posting I found: http://trickychix.blogspot.com/2006/05/ants-keep-on-marching.html.  Can you believe it?  And here’s a photo:  http://www.flickr.com/photos/yui0ta/2400558314/.  It’s good to know a tropical paradise isn’t always paradisiacal (yes, it’s a word!  I checked it out on dictionary.com).  :)  Maya, on all your trips to Hawaii, how could you fail to mention this little occurrence?!!

So, I went to Border’s last night to do a little reading and thinking about my job search.  I am overwhelmed and grateful at the same time:  overwhelmed by the work and bravery it will take to find a career I will enjoy, and grateful for the education I already have.  I get so angry at myself because when I first spoke with the career coach a few weeks ago, she asked how much time I had available to spend job hunting, and I responded that I was totally available.  She said my search would become my full-time job, and here we are a few weeks later, and I haven’t done half the items on the list she gave me.  I’m constantly finding other activities to do:  going to movies, cooking, playing with the dogs, walking, you name it.

I feel as though I have no experience applying for jobs, but I reminded myself  that last year, I applied and interviewed for two different jobs, within a few months of each other.  I worked at the first job, interpreting, for a few months, and relapsed a couple weeks after the interview for the second job.  I will always remember my interview several years ago, when I sat at a boardroom table fielding questions in both Spanish and English for five interviewers sitting across from me.  It lasted almost two hours.  I didn’t get the job because I didn’t have any experience, although they did make me feel good when they said I would have been a better fit personality-wise for the office.  What I was most proud of though was my ability to make it through that interview.  I’m pretty sure all future interviews will be measured against it.

But let’s get back to my current job search.  Here I am, and I regret to say I’m no further along in my job search than the last time I posted.  I sat down this afternoon to take care of some to-do items on my job coaching list.  First, I decided to check out facebook to send my friend, Maya, a message.  My mom is more up to date on my facebook than I am, and she had informed me that Maya found out she’s having a little boy!!!  So I logged in with the simple task of sending her a congratulatory note.  Then I decided to take the Myers-Briggs facebook test to see how it rated me (hey, that’s kind of related to a job search!).  As I scrolled through everyone’s updates, I noticed my friend Marcie’s new photos.  Through “Yearbook yourself”, you can upload a picture and then watch as the computer applies hair/glasses/clothes to transform you into a typical gal/guy from the 60s, 70s, 80s and 90s.  I just had to see how I would look in an afro, so I spent my job search time choosing the perfect picture and cracking myself up as the images spewed forth.  Now I sit here with a glass of wine, enjoying “House Hunters International”, and thinking about my day tomorrow and how I might redeem myself.

I saw “Julie and Julia” tonight, and I’m still enjoying the uplifting sensation you feel after a really, really good movie.  I’m inspired by both the acting and the real-life women behind the story.  I’ve watched my dad study “Mastering the Art of French Cooking”, making notes before beginning a recipe.  The book itself is daunting:  quite large and lacking in pictures (the latter is something which I find very reassuring).  I scanned the foreword and was surprised and delighted to read the final sentence, which echoed the feel of the movie:  “Above all, have a good time.”

I think I should follow that same advice for my career search.  After all, wasn’t the movie itself a study in finding oneself?  I should adopt Julia’s optimistic attitude, and also her order to “never apologize” (for whatever happens in the kitchen), not that it has anything to do with a career search!  From here on out, I will not point out flaws in my cooking.  Thanks, Julia (and Meryl).  :)

Just as with Julie and Julia, there is something I’m meant to be doing, and I look forward to figuring that out.  It’s a process, I know.  I’m learning a lot more about it as I read “What Color is Your Parachute?”.  And now, I can imagine Julie and Julia struggling and succeeding in their own careers.  If Julia could barely boil an egg when she began, who knows where I will find myself in a few years?  No, I won’t be taking up cooking as a profession, but I’ll have more confidence with each new recipe I undertake.  And I will be strengthened in my career search by remembering the efforts and accomplishments of an American icon.

One question I have after the movie:  what would Julia have thought of “I Can’t Believe it’s Not Butter”?!!  I am resolute in my decision to never touch the fake stuff!  Hey, Julia loved herself some butter and she lived to be almost 92!!

So here’s to butter, here’s to cooking and here’s to working toward finding the dream job.

“Find something you’re passionate about and keep tremendously interested in it.”  ~Julia Child

Will do, Julia…will do.

Lots of love to everyone,

Julie

Written by JKM on August 5th, 2009

My bugs are back!  Hmmm…that doesn’t sound good.  It sounds like I have bugs on my person or something.  What I mean to say is that the katydids are here!  To me, they are the sound of summer.  Sure, during the day, there are crickets and other various arthropods, but the true symphony begins after the sun goes down.  Here’s what I’m talking about:  http://free-loops.com/download-free-loop-6225.html.  Mix a little rain in there and you have the perfect summer sleeping soundtrack.  Don’t tell my parents, but I’ve been opening my window a bit at night (even though the A/C is on) just to listen to the bugs!  Whoops…I think I just told on myself considering Bob and Carol are avid blog readers.  :)

Speaking of sleep, I don’t feel as though I’ve done much of that recently.  Yes, nightmares are to blame in some part, but I also went out on the town last Thursday and to another wedding this weekend.  Thursday, I went with Laura and friends to Lisa’s bachelorette party which was wonderful!!  We rented a limo and enjoyed dinner at “Lebanese Taverna” and salsa dancing at “Havana Village”.  Somehow along the way, we drank eight bottles of champagne in the limo (I believe there were twelve of us!).  I was DD so I didn’t partake of too much, but Laura’s Spumante was quite delicious.  I don’t fancy myself a champagne drinker, but that went down easily.  :)  As far as dancing, well, I’m pretty sure I smiled from the moment I walked into the club.  By the time we left, sweat was dripping down my face (I know, totally gross) and my hair was stuck to my forehead.  No, not attractive, but so fun!!!  It was great to celebrate with Lisa and all the gals before the wedding.  Laura has an entertaining and delightful group of friends, and I was happy to be part of all the fun.

Saturday morning, before the wedding, I woke up at 5:30 AM to go down to Fletcher’s Boathouse near Georgetown in order to do a water stop for Team in Training.  Guinny accompanied me, and it was a lovely morning.  We were on one of my favorite trails, the Capital Crescent (http://www.cctrail.org/).  I talked with many of my walk team teammates and cheered them on when they approached the water stop.  I felt a little jealous of the fact that they were able to be out there and participate, but I also felt excited just thinking about being a part of the action next year.  Other runners and walkers on the trail saw that we were there for Team in Training, and would occasionally shout “Go Team!” (our signature cheer :) ).  The best was when a young man ran by and yelled “You guys are awesome!!  I’m a survivor!”.  Some approached to ask more about TNT, others to beg for a bit of our water or Powerade.  Yes, we shared!  Coach Jacque said never to turn someone down in this heat.  I did think one guy went over the line when he asked for a power bar, but I let him take it.  Don’t you think that’s kind of rude?  Other women who took some water came back and gave us a donation!

I had a wonderful time, as did Guinness.  Everyone loved him.  You can see in the pictures below that he made himself quite comfortable, lying down in the middle of everything, making himself available for pats and attention.  I rewarded him with a nice swim in the Potomac and some fun in the mud.  The mud part could not be avoided because the “beach” or bank or what have you was sticky, deep mud, and Guinness was in his glory.  As soon as we got in the car, he zonked out, and he stayed like that for the rest of the day. I miss being part of the “Washington underground” as I refer to it; you know, the athletes and regular peops who wake up early and run/walk/bike/rollerblade to start the day.  When you sleep as late as I do, you don’t experience that very often.  :)

Amazingly, I didn’t even require a nap on Saturday!  We headed to Old Town for Lisa and Idan’s wedding, and more partying ensued.  Lisa looked beautiful and Idan handsome, and the dance floor was filled the whole night, spilling out onto the carpet just beyond.  I’ve never been to a Jewish wedding, and I can’t wait to go again!!  The rhythm of the music makes it impossible not to dance!  I still have “Hava Nagila” playing in my mind…in fact, I think it’d be a great song to hula hoop to!

In job news, well, there isn’t any news.  I did, however, speak with a career coach last week.  Simply talking to her raised my confidence level a couple notches, and made me more excited to start looking for something.  I think it will be helpful to have someone to whom I’m reporting my progress, because otherwise it would be too tempting to procrastinate.  I will keep you updated on what I learn through the experience because I know her guidance will be invaluable.

I was in line at Staples yesterday, listening to the mother-daugher pair in front of me converse with the sales associate.  The daughter was getting ready to head to NYU for college, and the associate was preparing to study law at Mason.  Their excitement for school was contagious and had me reminiscing about UVA and AU and the joy and possibilities that learning offered.  I thought about my new endeavor…finding a career, and I chastised myself for not exploring possibilities earlier, for not taking advantage of everything college presented.  I reminded myself again that the experiences that I did have shaped me into the person I am now, and the feeling of guilt subsided.  I’m not able to experience the anxious excitement of returning to school to explore possibilites, but I am now in the unique position to discover what career will work best for me, for now anyway.  I think one’s ideal career may shift and change in a lifetime, and that’s part of what makes life so interesting.  College is over, but the learning continues.

Today was a good resume-boosting day.  I heard back from Hogar Hispano of Catholic Charities, and I will go in September to a training class to help Spanish-speakers apply for citizenship.  Not that I’m doing it to build my resume…I think it’s an opportunity to use my language skills to help others, and to meet new people in the process.  A friend of mine who works for the American Cancer Society (ACS) also called me today to ask if I would speak at the upcoming “Bark for Life” walk sponsored by ACS (for more info, see http://main.acsevents.org/site/TR?pg=entry&fr_id=12677).  Ideas for a speech are slowly emerging, and I’m really looking forward to putting it down in writing.  This is my chance to thank Jameson and Guinness for all they’ve done for me as caregivers…yup, they refer to dogs as “canine caregivers”.  Sure, maybe Jamie and Guinness won’t understand all that I’m saying :) , but they’ll be by my side while I speak, my guardian angels, as always.

It’s interesting…after TNT this weekend, thinking about Hogar Hispano and also Bark for Life, the word “community” feels more powerful than it previously has.  Cancer taught me the importance of community, and it opened up doors that allowed me to be directly involved with mine.  Remember my moments of fame on the radio?  And then there’s the speech to the blood donors.  Of course we can’t forget TNT, ACS and fundraising.  These occasions gave me confidence to be more outgoing, to really reach out to others.  Now I have another opportunity to speak to the community with Bark for Life, and I will be able to reach out to the Hispanic community through volunteering.  Giving back is a high I know I won’t be able to give up.  I enjoy it, and I thrive on it now.  Sounds pretty selfish, I know, but isn’t that what they always say about reaching out to others?  One of the greatest benefits is how it makes you feel.  Thank you, cancer, for giving me the strength and the confidence to discover the ultimate meaning of “community”.

If anyone out there wants to come out to Bark for Life (and bring your dog!), it would be fun!  There will be a walk and some other activities, including an agility course.  It’s time to honor those quiet caregivers and companions whose mere presence is comforting.  For me, one of the tenderest (is that a word?!) moments will always be when Jameson approached me one night when I was giving myself chemo at home.  I lay on the couch, my eyes glued to “The Golden Girls”, trying to stay awake to take care of my pump once the chemo was all infused.  He walked beside the couch, leaned his head over and rested it very gently on my neck for a few seconds.  He then made himself comfy on the floor beside me, but his touch seemed to say “Don’t worry…I’m here.  It’ll all be OK”.

Another long post…I know.  But before I go, I wanted to share a few quotes with you that seem appropriate as I face this transition in my life, quotes that might inspire you someday.  :)

“Whether you think you can or you can’t, you’re probably right.”

- Henry Ford

“Life is not a matter of holding good cards, but of playing a poor hand well.”  (not that I have a poor hand now, but I did have a couple sucky hands there for a while :) )

- Robert Louis Stevenson

“I am not afraid of storms for I am learning how to sail my ship.”

- Louisa May Alcott

“Things turn out best for people who make the best of the way things turn out.”

- John Wooden

“Most of the shadows of this life are caused by standing in one’s own sunshine.”

- Ralph Waldo Emerson

Lots of love to all of you!
Julie

Hi, I’m Julie and I had leukemia.

Written by JKM on July 25th, 2009

I know you’re already aware of that, but I just figured I’d remind you.  OK, really, it’s because Laura made fun of me for sharing our story with strangers when we were in Cape Cod for Kristi and Dave’s wedding last weekend.  What?!  It’s an inspiring story, and I thought it would make others happy.  Laura, however, thinks the taxi driver didn’t need to hear about it…and those people who took our picture on the beach, they could have skipped the cancer stuff…tmi as far as Laura was concerned.  But I, on the other hand, was so happy to be on a mini-vacation at the beach with my gift of life that I assumed strangers would be happy for me too!  I think they were, by the way, but it kind of became our joke while we were up there.  “Hi, I’m Julie.  I had leukemia.”, although I didn’t really put it like that.

With the taxi driver, he asked what I did for a living, and when I said I wasn’t working, my darling sister chimed in “she’s a bum!” to which I responded “no, I’m not!  I had leukemia.”  Awkward, sure.  But also uplifting!  I mean, I’m alive, right?

With the couple on the beach, they were asking if there was any special reason for taking a picture of ourselves by a tandem bike in front of the ocean.  Laura said something about sending them to our parents, if I remember correctly, and I elaborated, drawing on the symbolism of a bicycle built for two…a seat for me and my bone marrow donor!  I know, I’m a dork, but I’m a grateful, happy dork.  This weekend was mostly about Kristi and Dave, but it had special meaning for Laura and me.  Last year at this time, I flew to Boston for the day to check out the hospital.  This year, I flew there to celebrate a wedding and enjoy a serenely beautiful part of the northeast.  So, after the treatment, going into remission, rebooting my immune system with Laura’s cells, how could I not see that tandem bicycle as something much more than a spontaneous adventure?

While we’re on the subject of the bike, let me tell you that tandem bikes are NOT as easy as they look.  It seems as though it should be effortless to ride along on a trail because you have four legs pedaling instead of two.  Here’s the reality:  the person in the back might as well be sleeping ’cause they don’t do that much.  The driver, however, must steer, pay attention to speeds, monitor obstacles, operate the brakes and do the bulk of the pedaling.  What the song “Daisy Bell (A Bicycle Built for Two)” doesn’t tell you is that when the second person climbs on, your balance is shot!  Then, if they move their handlebars, the driver’s seat moves back and forth as well!

Laura drove first, and I was surprised by her inability to gracefully maneuver the bike through a parking lot (i.e. I feared for my life).  We were giggling and trying to figure out just what we did wrong.  Finally, she got the hang of it and off we went.  We rode four miles on the Shining Sea Bike Path, from Falmouth to Woods Hole, past ocean views and beautiful homes.  We were the only tandem bike on the trail.  We stopped in Woods Hole to buy some souvenirs and walk around.  Then it was my turn.

Laura was not very confident in my ability.  Once, while practicing, Laura chastised me for crashing the bike.  I prefer to describe it as “laying the bike down”.  Hey, no one was hurt.  I would not give up, even though Laura was itching to get back in the front seat.  With some considerable skill and a lot of communication, we made our way back toward Falmouth.  She yelled if I changed gears without informing her, or if I decided to stop without much warning.  We paused for photos (and I told my story), and we made it back safely to the charming town of Falmouth.  Giddy with excitement about our new adventure, we chatted about what I would put on my blog, which pictures were best, what a gorgeous place it was and how we were looking forward to the wedding.

As you can judge from the photos, the weather was absolutely incredible!  Laura and I arrived quite early to the venue (not on purpose…we just didn’t know our way around town, so we gave the cab plenty of time to get us there).  It was on the grounds of an old mansion that was restored a few years ago.  We wandered around, doing a little photo shoot among the colorful flowers and trees, trying to act as though we got there early on purpose…you know, to tour the surroundings.  :)  When other guests arrived, we picked a good aisle seat, grabbed a glass of lemonade and settled in.

It was a beautiful wedding.  There were so many details that made it special, and the atmosphere was formal yet laid-back.  They make a beautiful couple, and it was obvious how excited they both were.  At one point in the ceremony, Kristi seemed to be distracted by something, moving around a bit before announcing that the ceremony had to be paused so her mom and matron of honor could help her get a bug out from under her dress!  :)  It was one of the highlights of the ceremony.  She was so happy and relaxed that she was laughing about a situation that might have made any other bride upset.  She laughed, we laughed, and the service went on.

Afterwards, we enjoyed a cocktail hour with delicious appetizers and some red wine.  Laura and I posed for another photo shoot, as you’ll see below.  The appetizers were spectacular, and Laura and I seemed to be in the perfect position as servers came by offering up various goodies.  Each time, we’d pretend like we had never tried it before, so they wouldn’t realize how much we had eaten.  “Oh!  That looks great!  I think I’ll try one.”, when really we already had two of them.  :)  I’m pretty sure they were on to us.  Oh well!

The other folks at our dinner table were awesome…it was very international.  Friends from Argentina, Australia, Colombia, Ecuador and Puerto Rico dined with us.  Another girl shared some stories of her time in the Peace Corps in Morocco.  Half of us were photography aficionados, and everyone had a wonderful sense of humor.  We talked and laughed from the moment we sat down.  Thank you, Kristi and Dave, for introducing us to so many wonderful people!!

Finally, the moment we had been waiting for…dancing!!!  Woohoooo!!!!  I love it when the bride and groom get out there and show their stuff, and Kristi and Dave surely did!  They danced almost the entire evening.  Seriously, that dance floor was rockin’!!!  Laura and I did our part, of course.  :)  Then came the hula hooping contest.  I hurried up to the DJ to make sure I grabbed an adult-sized hoop ’cause the child ones are way too hard.  I urged fellow hoopers to do the same.  The music began, and hips were a-swayin’.  I don’t know whether alcohol diminished their skills or if too many folks tried their luck at the child-sized hula hoops…perhaps all that practice paid off, but in any case, I won!  Can you believe it?  Yup, you read right…I WON!!  :)  Turns out that Laura didn’t wear the proper dress to hula hoop in.  I, on the other hand, took hula hooping into account when picking out my attire.  When the DJ announced that “the girl in the striped dress” won, I did a little curtsy…hahahaha, I really am a dork.  I couldn’t think of a better way to end the evening if I were writing a Lifetime movie.  :)  Girl gets cancer and adopts the hula hoop as her live-life-to-the-fullest symbol, sister donates bone marrow, girl recovers, sisters travel to Cape Cod to celebrate, girl wins hula hooping contest at wedding.  How perfect is that?

Oh, one more detail I want to share with you.  In lieu of favors, Kristi and Dave donated to The Leukemia and Lymphoma Society along with another organization.  I was extremely touched (no, I’m not just assuming they did it because of my experience…she told me they did. :) ).  Kristi and Dave, Laura and I were honored to be there and celebrate your wedding day with you.  Your friends and family are wonderful.  Kristi, I was especially excited to meet your parents…I felt like I already knew them after all this time!  Laura and I were sad to leave the Cape, but I have a feeling we will relive this weekend’s wonderful moments for a long, long time.  As Patti Page sings,

“If you spend an evening, you’ll want to stay

Watching the moonlight on Cape Cod Bay

You’re sure to fall in love with old Cape Cod”

~”Old Cape Cod”

One more highlight to our trip.  Now, I know that things don’t buy happiness, but sometimes that perfect piece of clothing comes pretty darn close.  You know what I’m talking about…we all have something that makes us smile simply to see it in our closet.  When I was little, they were red shiny shoes.  In high school, it was a t-shirt that I eventually had to patch to keep it decent.  I can’t remember what I loved in college…I’m pretty sure I still had that t-shirt though.  There have been several dresses in my lifetime, one pair of good dancin’ shoes (see photos below), a frilly and fun black sweater, my bright green jacket and now, a black jacket.  I saw it in the window when Laura and I walked by on Sunday, and then again on Monday.  Well, I tried it on and I felt beautiful immediately!  Laura wrapped a turqoise scarf around my neck, and I looked even better (if I do say so myself)!  I can’t wait for some good, cold weather!  Maybe I’ll turn the A/C up in the house just so I can wear it.  :)

Well, I do believe this may be the longest post ever, but I had so much to share with you!!  Before perusing the photos, I highly recommend opening up another window and going to this link:  http://www.youtube.com/watch?v=rM2Xa4RUBCk.  Keep it playing as you experience our Cape Cod adventure through the photos!  What a wonderful weekend.  When you get to the bike photos, switch over to this one:  http://www.youtube.com/watch?v=qXiWvJhTwfU&feature=related.  Enjoy!!!

Lots of love,

Julie

Because I can.

Written by JKM on July 16th, 2009

My mom leaves me notes wishing me a good day.  When I first wake up in the morning, before doing anything else, I walk to the fridge to read her note.  Some days she doesn’t leave one, and that’s when I know they were in a rush or perhaps I was awake enough to have a bit of a conversation with her when she came in to say goodbye.  When I was little, she wrote notes on the small chalkboard in my room…cute messages or pretty poems.  She would also stick them in my lunch, up through high school, when she packed a huge lunch to give me strength to run all those miles for cross country.  Yes, I’m spoiled.  Although I’m now 31, I still love reading these messages, and I admit, I expect them.  :)  Today she wrote “Have a fun day!  Love, Us”.  I read it twice, and I thought, “she wrote a fun day, not simply a good day”.  Somehow this was different.

As I prepared my yummy FiberPlus cereal with blueberries, I pondered the fact that I don’t have many responsibilities right now in my life.  Each morning when I wake up, I feel excited to start the day, but pressured to make each day worthwhile.  As you know, my to-do list is always long, and come bedtime, I often have to re-evaluate it and promise myself I’ll be more efficient the following day.  I’m pretty sure this happens to everyone, but when you’re not working, you feel as though there’s no excuse for not accomplishing everything.  That’s what I think about when I wake up, everything I should be doing…stuff that most definitely is not fun.

Today though, my mom’s note gave me a pass!  At least, that’s how I took it.  :)  She wrote to have a “fun” day, so I decided not to feel so guilty about reading all the short stories in last week’s “Washington Post Magazine”.  I made myself some coffee, and heck, maybe I’ll even use those cute sugar stirrers she brought me the other week to mix my milk in!  I wonder if I’ll have time to head over to Burke Lake Park with the pups to go for a long walk.  Or maybe I’ll try to delve further into the new book I started. I also need to check out the food section from yesterday’s newspaper.

No matter what, I won’t feel guilty because Mom told me to have fun.  She doesn’t know it yet, but her short message really made my day!  I know I’m a lucky gal because I’ve had all this time off (despite the reasons).  I do fun stuff all the time, but I’m always thinking about what I should be doing.  Not today!  Thanks, Mom.  Can’t wait to see what today holds for me.  But first, let me pour my coffee and start reading “The View from Lake Como”…because I can.

Written by JKM on July 14th, 2009

“Live in each season as it passes:  breathe the air, drink the drink, taste the fruit.” ~Henry David Thoreau

It seemed the perfect quote to begin this blog, considering the incredibly beautiful July we’re enjoying right now!  I’ve been taking the dogs for walks after dinner, and each night I’m amazed by the beauty of the season:  fireflies lighting up the sky, baby deer grazing in yards and ducking under fence posts, owls hooting in the distance, the smell of grilling food and cut grass wafting through the air.  Other neighbors are out riding horses, walking their dogs, swimming in their pools, chatting with friends.  I’m so thankful that we have four seasons here in Virginia, and each one is distinctive.  I’m not sure whether Thoreau meant this phrase to apply more to the “seasons” in life, such as childhood, young adulthood, middle age, old age, or whether he referred to the seasons themselves, but I’ll pretend that it means both.  :)  In either case, it’s good advice.

I’m enjoying the All-Star Game right now, wishing I were in the stadium eating a hot dog and cheering on the American League.  Well, technically, I’m not that hungry ’cause I was spoiled today, eating out for both lunch and dinner!  It was an all-Italian day…yummy!  But I think the delicious Italian food is one of the reasons I weight twenty more pounds now than I did last year at this time.  Yup, I had my check-up today, and I weigh 141 pounds right now.  We looked through my history and discovered that last July I weighed 121 pounds, although that was a bit underweight for me.  Still, twenty pounds is quite a bit to pack on!!!  :)  I can’t blame the steroids anymore.  It’s time to up the exercise!

My counts are still good; they’re about the same they were last month.  Dr. Orloff had them test my hormone levels at my last visit, and he was quite perplexed to discover that I’m not in early menopause as a result of the amount of chemo I’ve had over the past years….wonderful news!!  It doesn’t necessarily mean that I’ll be able to have children, but it is a possibility, which gives me great hope.

In other news, I got to hang out with my buddy Jack!!!  It felt so good to hug him (and boy does he give good hugs!).  I look forward to getting to know him again.  Now that he’s almost two, his personality is really starting to shine through.  I love this age!

I also met up with some of my teammates from Team in Training this weekend.  My former coach, Jacque, shaved her head to raise money for members of the walk team.  She raised over $4,000, and gave $250 to 17 participants (they drew names out of a hat).  The really cool thing was that she did it after they trained Saturday AM, and everyone took turns snipping or shaving, so the whole team felt like they were part of it.  A New York Times photographer was on hand to get some shots and interview Jacque.  It turns out that she has a beautifully-shaped head and perfect features to pull off the bald look.  See photos below.  :)  That money will be really helpful to the participants as they work toward their fundraising goals, and ultimately, it will make a difference in the lives of blood cancer patients who benefit from the research and services done by The Leukemia and Lymphoma Society.  Jacque, I look forward to training with you next year!  I think I’ll be ready to do the Nike Women’s Marathon in the fall of 2010.  Anyone interested in joining me?  Just so you know, we (the walk team) have way more fun than the run team!  They’re so serious, but we pair fun and exercise!!

Speaking of fun and exercise, I signed up for a belly dancing class!!  It lasts several weeks, and I can’t wait to give it a go!  I’m sure I’ll have some good stories to share with you once the class starts.

In job/career news, I called Vienna Women’s Center yesterday to talk about meeting with a career coach, however I haven’t heard back from them yet.  I’ll keep you posted.  I also left a message with Catholic Charities regarding a volunteer position that sounded like a lot of fun.  I would volunteer eight Saturdays a year to help Spanish-speakers apply for citizenship.  Any other Spanish-speakers out there interested in joining me?  Paulina?  Paloma?  Henry?  Kristi?  The more I think about a career, the more I realize that I don’t want it to center around what I’ve studied for so many years, Spanish.  I would love to be able to use it at work, but I don’t want to teach it, and I don’t want to spend all my time translating or interpreting.  On one hand, I’m discouraged by the fact that I spent so many years focusing on the Spanish language and culture.  On the other hand, I think about all I learned and how it’s shaped my experiences, and I realize I studied exactly what I wanted to study, whether or not it directly applies to any future job position.  I really hope Vienna Women’s Center can help give me some guidance on how to best move forward in my job search.  I’m very intimidated.  I keep reminding myself of that wonderful quote by Edward Everett Hale:  “I am only one, but I am one.  I cannot do everything, but I can do something, and I will not let what I cannot do interfere with what I can”.  Plus, I kicked cancer’s butt twice…I can do anything!!

OK, this has been another long one.  Enjoy the pics!!  And don’t forget to savor all the beautiful summer moments.  :)  Here’s one more quote to inspire:

“That beautiful season the Summer!

Filled was the air with a dreamy and magical light;

and the landscape

Lay as if new created in all the freshness of childhood.”

~Henry Wadsworth Longfellow

Lots of love

Julie